Happy Rent opening day. I want to ask you all to take some time today to remember Mr. Larson and think about his needless death. Jonathan's death from an aortic Anyereusm, believed to be caused by Marfan Syndrome, could have been prevented if doctors in the hospitals he visited had known about the condition.
As a young man, who also has Marfans, Jonathan's words and music and life are an inspiration to me, as I know they are for many others. Please take your love of his work and the energy you feel, and channel some of it into spreading awareness of Marfans. you can visit www.marfan.org or the Jonathan Larson performing arts foundation at http://www.jlpaf.org/ for more information.
Because of the work of his family and the National Marfan Foundation, I am free to pursue my dreams. I am in his debt, and think we owe it to him to try to do what we can to prevent more needless deaths.
Enjoy the movie, it really is terrific, and I hope you all have a great day
With a Marfan diagnosis there is treatment, sometimes drastically invasive, but viable.
With no diagnosis, there is no treatment. One of the most presumptive and scary things I have ever done is told someone to go talk to his doctor about Marfan and even given him the name of the specific test to ask for which is an 'echo-cardiogram' (this is a phonetic spelling).
After you learn about Marfan, make sure your own doctor knows about it. You'd be surprised how many do not.
It always amazes me that pediatricians in Jonathan's life didn't diagnose Marfan. Its not like he was from the boonies. He grew up in Westchester.
"If my life weren't funny, it would just be true. And that would be unacceptable."
--Carrie Fisher