The 2018 Rare Carousel Of Possible Dreams
The RARE Carousel is a unique opportunity between the Relapsing Polychondritis Awareness and Support Foundation, Festival of the Children Foundation and Global Genes that provides an exciting and innovative way for RPASF and other participating organizations to raise funds, cultivate new donors, increase awareness to enable education, develop support and hopefully fund a first ever symposium around diagnosis and treatment options for our children stricken with RP.
The Relapsing Polychondritis Awareness and Support Foundation (RPASF) is proud and excited to be a participating organization in the 2018 RARE Carousel! Because of Awareness, Rare Diseases are being discovered in children ever more and more often. Funding is greatly needed to study these diseases as they are overlooked or misdiagnosed in favor of more common diseases.
There is an urgent need to address the growing population of Pediatric RP patients and their families. 100% of the funds raised by our team will go directly to RPASF, Inc and will be used to make resources available to educate providers and patients 'families. Also, to bring together professionals and families to share current therapies, studies, legal consults and other opportunities, as well as discussion forum(s) and fun activities for the children. Ultimately if we reach our $50,000 goal, the funds will be used by RPASF will be used to host a symposium on Pediatric Relapsing Polychondritis. We need team members as virtual Riders and as such recruit your own sponsors in support of yourselves and our team RPASF, Inc.
Pediatric Relapsing Polychondritis - Rare Beyond Compare
For more information, to register, or to join RPASF team or donate, please visit http://www.festivalofchildren.org/site/TR/Events/General?team_id=2249&pg=team&fr_id=1510
For a complete list of participating organizations visit: globalgenes.org/rarecarousel/.
About the Relapsing Polychondritis Awareness and Support Foundation
RPASF is a 501 (c) (3) non-profit organization dedicated to supporting and advocating Awareness and Support for patients, care givers and physicians across the globe. We also strive to educate the public as well as representing our patients to the global medical communities. For more information please visit http://www.polychondritis.org
About Global Genes
Global Genes is a leading global rare disease patient advocacy organization. The group's mission is to connect, empower and inspire the rare disease community. Recognized worldwide by the Blue Denim Genes Ribbon, Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 7,000 rare and genetic diseases that impact approximately 30 million Americans and over 350 million people worldwide. For more information, visit http://www.globalgenes.org.
About Festival of Children Foundation
Festival of Children Foundation is a 501 (c) (3) non-profit organization that serves to bring together and coordinate the efforts of charities, companies and individuals who actively work to improve the lives of children. Festival of Children Foundation gives a voice, guidance and support. 100% of the administrative costs are covered by designated funding, allowing donations to go further in direct support of programs and services that improve the lives of children. http://www.festivalofchildren.org