Kathryn Hulings Releases LIFE WITH A SUPERHERO: Raising Michael Who Has Down Syndrome
This powerful, funny and heartwarming story begins over twenty years ago in a small Israeli town, where a desperate mother told a remarkable lie. She told her friends and family that her newborn child had died. That lie became the catalyst for the unfolding truth of the adoption of that same baby-Michael -who is, in fact, very much alive and now twenty-two years old. He also has Down Syndrome.
When Kathryn Hulings adopted Michael as an infant, she could not have known that he would save her life when she became gravely ill and was left forever physically compromised. Her story delights in how Michael's life and hers, while both marked by difference and challenge, are forever intertwined in celebration and laughter. With candor and a sense of humor, LIFE WITH A SUPERHERO wraps itself around the raucous joy of Michael's existence with his four older siblings who play hard and love big; how Kathryn and her husband, Jim, utilize unconventional techniques in raising kids; the romance between Michael and his fiancée, Casey; the power of dance in Michael's life as an equalizing and enthralling force; the staggering potential and creativity of those who are differently-abled; and the mind-blowing politics of how Kathryn navigated school systems and societal attitudes that at times fought to keep Michael excluded from the lives of kids deemed "normal."
Kathryn's compelling, hysterical narrative highlights the rich, colorful story of Michael's childhood: from showing up in his 7th grade social studies class dressed like Spiderman to calling 911 when his girlfriend breaks his heart. Through it all, LIFE WITH A SUPERHERO shows readers the experience of motherhood in extraordinary circumstances -sometimes with success, sometimes with dismal failure - as Michael grows from a baby to an amazing young man.
"LIFE WITH A SUPERHERO is a welcome and necessary book about raising a child who has Down syndrome. With a huge heart, this book explores the Hulings family's experiences as their son and sibling, Michael, grows into young adulthood-the same stage of life my son Max, who also has Down syndrome, is entering. In each chapter, Hulings establishes that unlimited joy and life-affirming moments will continue to unfold in wonderful, unexpected ways for families who already celebrate existence with a person who has special needs-or need assurance that such a thing is possible.- John C. McGinley, Actor ("Scrubs," Platoon, Wall Street) and noted advocate for individuals who have Down syndrome, serving as Ambassador for both Special Olympics and the National Down Syndrome Society, board member of the Global Down Syndrome Foundation, and one of the original creators of the Spread the Word to End the Word National Campaign